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Anxiety Surrounding Surgery

12/28/2015

3 Comments

 
Depression and anxiety are tricky beasts.  There is a lot of emotions that one can experience, even in a normal uneventful jaw surgery experience.  It's totally human.  I've definitely felt the full spectrum of everything in the last few years, especially since my experience unfortunately wasn't uneventful.  Again, totally human.  I should be feeling something since this all has practically dominated my life the last 2-3 years.

After my first surgery flopped, I was in a pretty bad spot.  Confusion, then denial, then pretty bad depression, then anger, and then the last year or so I've been in acceptance mode.  People hear me use the expression, "It is what it is," a lot.  Talking with a therapist helped, but I think I forced myself in to acceptance mode to avoid going completely bat shit crazy, but subconsciously I was still feeling all of the anger and sadness over everything too.  I feel like a lot of emotions have shifted in the last month or so.  Old ones resurfacing and new ones rearing their ugly head.  My bite has become embarrassingly bad.  This has been causing some anger, frustration, and embarrassment, especially in situations in front of people who I am not closest to.....like when I drooled on myself at my last presentation I was giving to a group of about 30 pilots.  Same thing happened the other day in front of a few coworkers, and more often than not, I am lisping and slurring often when I speak to them.  Or when I am having trouble chewing and food falls out of my mouth in front of others.  It's been getting bad lately.  People understand most of the time, but it's been frustrating and embarrassing none the less.  What makes it even more frustrating is that I should NOT be here.  This is not the situation I should be in after ortho and jaw surgery.  I don't deserve this.  And then more anger knowing that it's my original surgeon who's done this to me with no explanation or apology.  I really think that is the root of most of my anger still.

I've always had anxiety issues when it comes to medical appointments. I was the type of person who would get so wound up before a simple teeth cleaning that I would throw up before going to the appointment.  It's sad, but I need a xanax just to go to the dentist.  So, in the weeks leading up to my first surgery, I was a wreck.  I wasn't sleeping, I was irritable, short fused, and constantly on the verge of a panic attack.  I ended up taking the whole week off before surgery to take whatever I needed to keep me calm, and try to be as destressed as possible. Figured I would be doing the same for revision, but then a super important event popped up at my work that would require me to be there just before surgery.  So, more stress added to the mix worrying about surgery and what is best for me and also not punking out of work when they need you to step up the most.  But even this whole last month, a full 6-8 weeks before surgery, I am already having issues.  The anxiety I had last time is even worse now, probably because I am much more scared to death of the results this time around.  What if it's not right again?  I seem to have the worst luck with all of this jaw stuff.  Will my bad luck continue?  Will I be even worse off after this revision?  I like to have everything planned out and be in control, and this is the main element I have no control over.  And like last time, despite my best planning and effort as the patient, it could go way bad again.  That is a hard pill to swallow, and I think most people would be feeling what I am feeling going in to this.  So, I won't sugar coat it, but I've been a mild train wreck and it's not even the 4 week mark before surgery.  Some days I am barely hanging on.  To the point where I feel like I just need to get up from my desk, announce sick leave, and go home for the day from work.  To be fair this isn't just the emotional side of this causing some of those days, but also the physical side dealing with the pain and discomfort of my current bite and jaw positioning.  It starts from the moment I wake up and never ends.  I'm sick of taking advil 24/7.  I think one of the main reasons I haven't tapped out is because I am stubborn and hate nothing worse than quitting.  Going home would be quitting.  It would be like letting my surgeon win.  Maybe I need to get over that, because worrying about feeling like a defeated quitter has also just added to my stress.

I think I am just getting tired after dealing with this for so long and I'm reaching a breaking point, which unfortunately is at a crucial time right before revision.  I've done so well of keeping it all together through this whole nightmare the last 2 years, and it sucks to feel defeated towards the end.  If I had unlimited sick leave or the ability to go out on disability for the next few months through all of this (unfortunately that is not the case.  No such thing as disability when you're a federal employee and my sick leave bank has continuously been drained the last two years through all of this), I would probably do it.  Not only to keep my sanity, but to keep my friends and coworkers away from the emotional fallout from my issues with all of this.  Quite frankly, I've been a short fused bitch lately.  My poor husband.... luckily he knows how to deal with it and knows it's how I deal, so he does an awesome job of not taking anything personally and cuts me a lot of slack in a lot of ways, but I've caught myself being super short with friends a few times lately, and co workers as well.  I've been able to catch it after the fact, and sometimes apologize, but then it just leads me to feeling even more wound up and bad and just adds to the already high strung and mixed up emotions going on.  This happened last week when I bit a friends head off just for her poking a little bit of fun at me for blowing a weather forecast for their outdoor activities (which under normal circumstances would have been totally fine and I would have laughed with them about it).   I've also tried removing myself from situations where I could bite somebody's head off; just keep to myself quietly..... and then people think I am a bitch for being quiet and removed in response to everything and everybody.  So, it's really a lose lose situation no matter what I do right now....which again, leads to more frustration.   So, I really don't know what to do.  I always tell people going through a tough time with this process to seek a therapist, so maybe I will take my own advice and go talk to somebody again.  It did help after my initial botched surgery.  Otherwise, I need to find a way to get through the next month or so without completely falling apart and pushing all of my friends away in the process.  Not sure how I am going to do that, but my guess is it will involve some good sleep and anxiety meds.
3 Comments

These Are Always The Toughest Posts

12/12/2015

2 Comments

 
Usually I don't do a couple of posts in the same week, but after this last adjustment, my bite is driving me crazy.  Well, it wasn't so much just the last adjustment, but the one before it and the final 5 weeks results of that are rearing it's ugly head. As I said in the last post, I've expanded 5mm on the top pallet.  That's definitely been the straw that broke the camels back in terms of dealing with this horrendous pre op bite (where it's supposed to get worse right before surgery).  So, I got around to taking a few glamour shots since I haven't done so in a while.  Forgive the discolored teeth.  I've had a space open up between my two back molars where I do all of my chewing and food is shoving up in to the gum and that area has not been the happiest camper recently.  So, I've been using a little peridex here and there to help keep that area extra tidy.  That stuff stains my teeth SO bad!  Click on each picture for more info in the caption.
Straight on the overbite is not so bad. The cant is still rockin down to my right though. You can also see the corner of the tooth I broke when I was home in Philly a few months ago, and the space between my left incisor and lateral incisor that has opened up with the expansion.
TPA is still in. 2 months and 5mm expansion out of it. I almost feel like I can see the yaw in my jaw with this thing in-- notice now it's not centered in a few of the pictures. Pretty sure my upper jaw is twisted to the right anterior and pops out left posterior.
Before expansion, I was mostly dealing with an anterior open bite with basically 2 back teeth meeting. Now after expansion, my top is wider than my bottom, and I am barely just touching on the inside edge of my top teeth to the few bottom teeth. Chewing things like lettuce has been really tough.
Pre op bite
Bite from the side
Buck teefs at rest. Can't wait to have this fixed and be able to close my lips once and for all!!
5mm doesn't sound like a lot, but with teeth/jaw stuff it is. Comparison from TPA day 1 to today.
These updates with the pictures are so hard, but for full info on this journey, it has to be done.  So... we're at like defcon 4 for these chompers.  This needs to be fixed.  I am having a lot of trouble eating, my jaw is even more sore, TMJ even more sore, having trouble speaking, and now after this expansion, I am having more trouble sleeping too with all the teeth not sitting right.  I clench or clamp down in my sleep and wake up thinking I broke a tooth when they hit together abruptly in the wrong spot.  They make this weird screech when they slam together the wrong way.  It sounds a lot louder in my head than it really is, but it'll wake you up for sure!  And the headaches have been non stop too.  Really glad that this is the final stretch, because I don't know how much more I can take of this.

I am just hoping among hopes that my surgeon takes a look at me that first week of Jan and decides he can get me in a couple weeks later.  It would be really awesome.  But then comes the whole anxiety with the revision.  I want this fixed so badly, but what happens if it's not fixed again?  I've been so wound up lately that I've even started to just cry for no reason thinking about it!  There is some hope here though.  Seeing a few other recent patients go through their revisions with good results on the other end.  I am so ecstatic for them and really really really really really hope I can get the same for me.  I feel like I at least deserve a little improvement after all of this.  I'll take imperfect, but it hopefully is at least 50 or 75% better.  I hope.

So.. after all the bad pictures, I'll end with a decent one.  My husband works at Google and they have a rockin holiday party every year.  This year he switched teams and works for Googlemaps, so it was in a different venue and stuff, but still just as awesome.  And surprisingly, somehow I photographed well that night! Only thing I have to complain about is you can definitely see the almost 20lbs I've put on.  BUT... have to remind myself it's all for a good cause.  I know I'll be SO happy I ate like a little heifer when post op wired shut time comes!
Picture
Google Holiday Party 2015, San Francisco CA
2 Comments

The Wildcard

12/7/2015

0 Comments

 
Had another ortho check up today.  Last for 2015.  I was anxious to see how much more I have expanded since last month.  Doc was pretty surprised with the 2mm I got at the last appointment, and advised that both he and my surgeon were looking to get to 5mm but they weren't sure if it was going to be possible with ortho alone.  I've been crossing my fingers and saying "cccooommmoooonnn little TPA!"  I guess some good vibes went to the right place because I measured just over 5mm today!!  Ortho seemed pretty stoked and surprised.  He said this is the wildcard that was on the table in terms of holding up my surgery.  Now that we have the 5mm in good time (and they were wondering if they were going to be able to do it at all!), sounds like I am getting ready to be kicked over to my surgeon......FINALLY.  So, I've got one more appointment on Jan 4th to check in with my ortho, and that will probably be that.  He basically told me today he doesn't have much ortho left to do for his pre op stuff, nor does he really want to do any more at this point.  He would rather get me leveled off and stable before surgery.  So, Feb is a definite now.  And personally, I am still not ruling out the end of Jan.

In terms of housekeeping at this appointment, the TPA got left alone.  I think I got one or two new bends in the top wire, and alas, finally a c-chain on the top to close up all the spaces that have opened up.  Especially since the expansion I've had a few large gaps pop open on me in the last two weeks. Oddly enough, I am pretty much not sore at all.  Usually when those chains go on it can always end up being a little bit of a crap show that first night at home.  But, like 99% of my adjustments at this office, I pretty much have no uber bad pain. 

So, peace out to my doc for the rest of 2015!  Jan 4th is the next appointment, which will probably be followed up with an appointment with my surgeon (finally!) soon after. 
0 Comments

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